I just don't know what else to do

Discussion in 'Truckers Health With Dr. Daliah' started by Duck, Sep 7, 2016.

  1. Duck

    Duck Quack Supporter

    I've just shot a 15 minute video with my phone of @Mrs Duck having a grand mal seizure.

    It was the third so far since she was told by a "clinician" working for her neurologist to stop taking a new drug called Fycompa.

    This new drug replaced tegretol which she had been on since the onset of epilepsy at the age of 15 which we believe was caused by her stepmother hitting her in the head repeatedly with a cast iron skillet as punishment for confessing to losing her virginity. To me..

    Anyway the first was at noon 30 yesterday (Tuesday). I was in another room and heard loud moaning that sounded like someone who had just peered into the depths of Hell, followed by a loud thump.

    I went into the room and she was on the floor behind the door, in violent convulsions, eyes wide open staring into space, making snorting sounds but they stopped, convulsions continued and her lips turned blue. I jammed my arm behind her back & lifted her up but her neck was limp and her head tilted back. So I slid my body behind her to hold her torso when I tilted her head up & the snorting sounds resumed x



    Just had another one, ambulance on the way gotta go
     
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  2. Duck

    Duck Quack Supporter

    Anyway the clinician told her to stop taking Ficompa & then boom, grand mal seizures. So I got her to take the Ficompa at 3am but it didn't help so I called 911.
     
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  3. Injun

    Injun Rabid Squaw Staff Member

    Dang, Ducky...

    Thinkin' good thoughts your way.
     
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  4. GAnthony

    GAnthony Well-Known Member

    geez man, prayers and best of luck to the wife, and you.
     
  5. Tazz

    Tazz Infidel Supporter

    She needs to see her regular Doctor this am. Thoughts man.
     
  6. krelithous

    krelithous Prius hater Supporter

    Damm duck sending out thought's and prayers your way
     
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  7. Southern Fried

    Southern Fried Well-Known Member

    Just said a quick one for both of you. Hang in there.
     
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  8. Sinister

    Sinister Smartass Emeritus Supporter

    Holy crap.

    Hopefully the docs figure something out quick.
     
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  9. krelithous

    krelithous Prius hater Supporter

    how is she now:confused-96:. hopefully they got her stabilized. make sure she get's lots or rest once she get's home
     
    Duck likes this.
  10. Hammer166

    Hammer166 Instigateur №166™

    Dammit Duck! Prayers for the missus and you.
     
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  11. Duck

    Duck Quack Supporter

    Is Ativan a "controlled substance", meaning a commonly abused medication like oxytocin & pain killers?

    Doc seems hesitant to give her an Rx for it.

    We need to keep some on hand even if it's just 2 or 3 actual doses because that's all they do at the ER. Except they give it to her with an IV. A nurse said they have it in pills.


    Grand mal seizures are creepy.

    They begin with a loud horrified sounding moan like something a ghost or a demon would make in a horror movie, then if she's on her feet or sitting upright she falls down and then the convulsions.

    There's really nothing I can do except watch & listen for the snorting sounds to stop, indicating she's not breathing & needs rolled onto her side or sat upright.

    So I got video of them to show her doctor next time we're in Chicago.

    She refuses to watch the videos & says I have to delete Tham after I show them to the neurologist.

    I told her I was going to put them on Facebook. ;)

    She didn't think it was funny. :rolleyes:
     
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  12. krelithous

    krelithous Prius hater Supporter

    i wouldn't think it was funny either posting vids of mrs duck on facebook having a seizure. i'm surprized that she didnt shove a rolling pin up your :eek:
     
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  13. patriciajnsn

    patriciajnsn Steering Wheel Holder

    Gee I cant imagine why she didn't think that's funny.I thought it was hilariousNOTTTTTT she needs to kick your ass..Get Well soon Mrs duck.
     
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  14. krelithous

    krelithous Prius hater Supporter

    after dealing with people in the medical field. have you tried getting mrs duck on a different medication since she is prob immune to what she is on now:confused-96:. lamotrigine is a good drug iv'e seen people go 10 years without having a seizure:)
     
  15. Injun

    Injun Rabid Squaw Staff Member

    Ativan is a Schedule IV controlled drug. It is a sedative in the benzodiazepine family (like Valium) that can be habit forming. That's why they only give you a few at a time.
     
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  16. Mike

    Mike Well-Known Member Staff Member

    What I have said before, get in touch with an NPT and get her diet changed (great chance it will help). All these drugs are merely masking the problem, and that problem is clearly getting worse, not better.
     
    Tazz likes this.
  17. BirchBarlow

    BirchBarlow I hate KW 680s

    Erased because @Injun had it already 2 posts up
     
  18. ironpony

    ironpony Well-Known Member Supporter

    That sucks @Duck . Good luck to you and the Missus.
     
  19. Duck

    Duck Quack Supporter

    Today she's had 4 regular "complex partial B" seizures.

    Spilled her hazelnut coffee all over the bed twice. Flipped her laptop upside down with the screen open and sat on it. No idea why it didn't break.
     
  20. krelithous

    krelithous Prius hater Supporter

    sounds like mrs duck is worse off than some of the people iv'e seen with seizure disorders. you got your hands full hang in there
     
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